Bone Pain & Fatigue

Hi everyone. Hope you are all doing well. My bone pain has been moderate the last couple days, even on pain medications. And,my bones feel fatigued-like they are deteriorating. I know that sounds crazy, but they feel weird, very tired, and hurt. I know they are working hard. Just sick of of this crap. I know those that have neutropenia know what I'm talking about. Some days you just get sick of it all. Ugh! So, while I am so very thankful for all I have in life-my family, home, and things I take for granted all time-I just want to wallow and scream about my neutropenia pain, symptoms, and the deterioration of the health I do have and will lose as time goes on. Ugh! These days suck. I am thankful to all of you who read. I pray for all those with neutropenia and other health conditions envy day. My you find some peace. Kat

Family members better

Hi there. Hope you all are having a great start to 2013! Just wanted to send you a quick update-my family members are better. It was influenza and they are fully recovered. It took a full week. They were miserable during the illness, poor things. I am still hoping to get through it but, I'm not so sure. I'm trying to will myself healthy. But, my bone pain is so bad today-it hurts to move. Yes, it's just the neutropenia crap. It's not influenza. Although, part of me wishes it would just come so I could get it over with. I have no fever, cough, stuffy head, etc. it's just the bone pain from the neutropenia. I am sure my body is working really hard. And, I appreciate that. But, it still sucks. Not to mention, the pain just makes my body exhausted. Just keep hoping that it can fight it off and we can get back to normal around our home. Lastly, I hope that that you all are doing great and will have a very healthy new year! Kat

July 22, 2012

Hi there, Thank you to every one who's reading the blog. Much appreciated. This week, I have struggled with fever, skin cysts, sore throat, and bone pain. My pain meds continue to help make the bone pain tolerable. The pain has been moderate in my legs. One night this past week,I felt miserable. Very tired, in pain, and thought I was getting the flu or virus. But it only lasted one day, so that's good. I have not been able to exercise due to infections. But am hoping to start tomorrow or the next day. Hope you are doing well. Take care of yourselves. Kat

June 5, 2012 Pain, Fever and Bruises

Hi everyone, Hope you are well. I am doing fine. My bone pain in my body has increased in the last couple days. I can handle it but, it still sucks sometimes. Sometimes I wonder, Why? What's the point? Not sure yet. If these posts help someone out there-you-then, that's good. That is good enough for me. So, I get over that quickly. My pain meds-which includes acetaminophen-has not been taking care of my fevers. So, my daily fever-with the meds-is between 99 and 100. Never enough to go to the doctor, but enough to make you feel like crap. I guess they would be higher without the meds. I have been noticing more bruises on my body the last couple days. Ugh. Bruises on legs and stomach for no apparent reason. The bruises on my legs have always happened-but there are a few more than normal and the stomach is new. And those hurt. (I do not take Neupogen injections; so, they are not from that in case you are new to reading the blog :) ). As far as the rest of things go, I have been feeling fine to good. Like many of you, I will sometimes get mad about the pain that I experience or just the general feeling of fatigue and feeling run down; but then realize that there are so many others out there that have to deal with worse things.....so I get over it. Honestly, I have two legs, two arms, the ability to see, hear, feel, etc. I thank God for those things every day. Thanks for listening (reading). Hope you all have a good week! Kat

So Tired

Good evening,

The last three days, I have been so tired. And again, it's not the tired that can be helped by sleep or rest. Your body is just tired, achy, and there isn't a position that feels good.

The bones that hurt today were my legs, arms, jaw, arms and hands. My pain med helped a little bit. Didn't eliminate the paint today.

Starting to get a mouth sore-and it's on my tongue. Ugh! I hate when they are on your tongue. Those are the worst.

Still trying to work out most days. Sounds crazy some days-but it does help wtih the whole day-not as tired and usually helps the energy. There are a few time where my body is so tired that workint out does no good-and wipes me out the rest of the day.

I do wonder my WBC and Neutrophil counts are-has been a couple months. Still waiting for the big test that was done a couple weeks ago. But, it will be a couple more weeks until the results come in. Waiting game. You know what that's like ;)

Thanks for reading/listening. Hope you are all doing well.
Take care,

Kat

Legs Weak & in Pain

Hi everyone,

Legs hurt today-and hurt. Ugh.
I got frustrated tonight due to the chronic pain and not remembering what it feels like to feel good. I really do try to not feel sorry for myself-because I have a lot and I do appreciate what I have. Some days are just hard and I cried.

I am very tired, so going to bed.
Hope you have a great night and are doing well.

Kat