May 2013 update

Hello readers. Hope you are doing well and able to take care of yourselves. I would say I'm doing well. I still have my ups and downs but hey, I still here. My bones continue to hurt everyday, more so than before. And, I still have the sore throats, fevers, intermittent lung pains, and fatigue. Just get so tired. Like coma tired. Sleep does not help. So, people telling me to rest does not help (I don't get mad, I know they mean well). I still have days when I just get mad about it all. I get sick of the pain, the fatigue, and just feeling like crap most of the time. What does get under my skin is when others complain about mild symptoms that they have had come on-sore throat, for example. I know that it isn't always there and it does hurt but, really? $&7)&$($. He he. I honestly try not to think too much about "Why me?" Because honestly, why not me? I would rather have this than have the children suffer with it. If I could take neutropenia away from them,I would in a heart beat. Anyway, now I'm just ranting :) wanted to send a quick update. Thanks for reading. Take care. Kat

Bone Pain & Fatigue

Hi everyone. Hope you are all doing well. My bone pain has been moderate the last couple days, even on pain medications. And,my bones feel fatigued-like they are deteriorating. I know that sounds crazy, but they feel weird, very tired, and hurt. I know they are working hard. Just sick of of this crap. I know those that have neutropenia know what I'm talking about. Some days you just get sick of it all. Ugh! So, while I am so very thankful for all I have in life-my family, home, and things I take for granted all time-I just want to wallow and scream about my neutropenia pain, symptoms, and the deterioration of the health I do have and will lose as time goes on. Ugh! These days suck. I am thankful to all of you who read. I pray for all those with neutropenia and other health conditions envy day. My you find some peace. Kat

Glad you found me

Hi K. I just read your message that you sent to me a week ago. I'm glad that you found me and find the blog helpful. I'm sorry you have neutropenia but, glad you have had no major issues. Thank you everyone for reading my blog. I hope you all find it helpful and interesting! I have been doing well. Still struggle with the same daily issues-fever, bone pain, sore throat, and fatigue-but really try to have a positive outlook. The last couple days, I have been really tired. So, going to try to take it easy. I have been exercising moderately and trying to adjust my diet even further to help with my health. Limiting carbs and eating more protein. At least trying! I wish you all well! Have a great weekend. Kat

Family members better

Hi there. Hope you all are having a great start to 2013! Just wanted to send you a quick update-my family members are better. It was influenza and they are fully recovered. It took a full week. They were miserable during the illness, poor things. I am still hoping to get through it but, I'm not so sure. I'm trying to will myself healthy. But, my bone pain is so bad today-it hurts to move. Yes, it's just the neutropenia crap. It's not influenza. Although, part of me wishes it would just come so I could get it over with. I have no fever, cough, stuffy head, etc. it's just the bone pain from the neutropenia. I am sure my body is working really hard. And, I appreciate that. But, it still sucks. Not to mention, the pain just makes my body exhausted. Just keep hoping that it can fight it off and we can get back to normal around our home. Lastly, I hope that that you all are doing great and will have a very healthy new year! Kat

So Tired

Good evening,

The last three days, I have been so tired. And again, it's not the tired that can be helped by sleep or rest. Your body is just tired, achy, and there isn't a position that feels good.

The bones that hurt today were my legs, arms, jaw, arms and hands. My pain med helped a little bit. Didn't eliminate the paint today.

Starting to get a mouth sore-and it's on my tongue. Ugh! I hate when they are on your tongue. Those are the worst.

Still trying to work out most days. Sounds crazy some days-but it does help wtih the whole day-not as tired and usually helps the energy. There are a few time where my body is so tired that workint out does no good-and wipes me out the rest of the day.

I do wonder my WBC and Neutrophil counts are-has been a couple months. Still waiting for the big test that was done a couple weeks ago. But, it will be a couple more weeks until the results come in. Waiting game. You know what that's like ;)

Thanks for reading/listening. Hope you are all doing well.
Take care,

Kat