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Wednesday, October 30, 2013
Reaching out..... Please respond
Hi there. Thanks to the individual that sent a message recently. I am so sorry about your experience with cyclic neutropenia. Please feel free to write again, and include your phone or email- whatever would be the best way for me to get in touch with you. I would be more than happy to talk to you. I went years without knowing anyone with neutropenia and it's almost validating to do so! So please let me know. I do not post the comments, so no one will see it but me. Honestly, I remember talking to someone who had neutropenia and I almost felt a sigh of relief-like I'm not crazy; this is real! So please reach out. I would love to talk with you. Kat
Thursday, October 17, 2013
Sick of symptoms, but try to stay positive,October 2013
Hello blog readers. Hope you are well. Thank you for reading this blog; you are appreciated. The bad bone pain I was struggling with a couple weeks ago did go away. I still have it every couple days but at least it's not every day right now. Thanks for your concerns. Now, I'm dealing with tonsillitis that is bad and lung pain that makes my ribs feel like they are broken when I take deep breaths sometimes. I know it's the neutropenia working overtime, but really? Can't you take a break? I really try to stay positive. I do feel blessed with many things that I do have in my life. But some times, I just want to feel no physical pain at all. Days like today make me want to scream: is that too much to ask? Ugh. I know many of you feel the same whether you have neutropenia or you struggle with other things. I am aware that every one struggles with something. I don't pretend that I am the worst off. I don't believe that at all. Some times I just want to feel 'good'-no pain, no symptoms, no fever. On the bright side-just so you all know-I am Thankful and appreciative for all I have in my life. Thanks again for listening and reading. Take care. Kat
Labels:
bone pain,
chronic illness,
chronic pain,
fever,
immune system,
Neutropenia,
SCN,
Sore throat,
WBC
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