I really hate Neutropenia today.......

Hi folks. Okay, I probably hate Neutropenia most days, but really hate it when it takes over my life and keeps me in bed for days! Ugh! My throat is sore and raw, lungs hurt-front and back-but no cough, and fatigue so bad it's hard to move. Those with neutropenia know what that fatigue feels like. It takes over and sleep does not relieve this kind of fatigue. I know my body is telling me it's time to rest, but I get it. Can we be done now? I have a low grade fever but nothing too alarming. The meds are keeping that down. There is no underlying infection that I would need to see my doctor for, unless I crash. I do remember what that feels like and will go in if that occurs. But, I'm not there. Anyway, just venting more than anything. I just want to get out of bed and live a normal life! Ugh. Thanks for listening. Hope you are all well and enjoying the long weekend. Take care. Kat

November 2012 update

Hi everyone. Thanks for reading this blog. Much appreciated. I'm doing ok. To be honest, I've been frustrated and depressed about the pain increasing. The pain is in my bones, increasing throughout the day. I've been trying to work with the pain meds to see if I can figure out to make them work better by time of day, taking together or not, etc. I do need to remember to stretch because that does tend to help-life just gets busy, as you all know. I've been good about being 'good to myself'so I don't over-do it. Life continues and I still want to do things. But sometimes it's hard dealing with the daily pain that comes with Neutropenia. So, I continue to move forward as you do too. Thanks for reading. And, I wish the best for you. Kat