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Sunday, October 30, 2011

Pain in the Lungs

Hi there,

I still have pain in my lungs. It's been going on too long to ignore it. It really hurt today around the back and hurt to breath. So, I will call the doctor tomorrow for a re-check. Not sure if there is anything they can do-but I guess we'll see.

As far as the other symptoms go, I still have bone pain-but taking pain meds to help with that- weakness, fatigue, and sore throats. I am still exercising-swimming and the elliptical-taking my vitamins, and trying to eat enough protein (vegetarian).

Emotionally, I have been pretty sad and angry about my neutropenia. I know that comes and goes too. Even after all this time, I guess I still hope for the miracle. I should know that it doesn't come. And, I need to take care of myself the best way I know how-less stress, exercise, rest, etc. etc.

I hope you are all doing well.
Take care of yourselves,

Kat

Sunday, October 16, 2011

Getting over Infection

Hi there,

This past week, I have been resting to get over a lung infection. It's tolerable but can be pretty painful at times. In addition, I have a sore throat but that has been pretty mild in comparison. My neutrophil counts are still pretty low (0.4 was the last checked) so I am not taking any antibiotics as they can decrease the counts even more.

My bone pain has increased this week as well. I assume from the impending infection. So, I have been taking my pain meds. I have been good about resting this week to allow my body to heal. And, taking my vitamins! The good ones! I would love to be working in my garden-but trying to be good about staying away from things that 'can be' harmful.

After this week's doctor's visit, I was a little disheartened and irritated with Neutropenia. I understand that I should not have the injections until I 'really' need them because they only work for about 24 hours for me-but the fact that antibiotics have been put into that category as well threw me for a loop. I have been talked to about Neutropenia getting worse for me but, I have never wanted to believe it. I have such drive. I want to go places! And, I really want to make a difference.

I hope that this blog helps others with Neutropenia. Please feel free to send a message. I am hoping I can help out in others ways too-educate others, advocate, write, etc. Working on things and we'll see what happens.

Hope you are all doing well! Take care of yourselves.

Kat