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Friday, August 23, 2013

Try acupuncture...it may help

Hi everyone. Hello to the kind individual who just wrote. I appreciate your nice comments about my blog and about my dealings ith neutropenia. I would suggest you try acupuncture to see if it helps with your neutropenia. I tried acupuncture a year ago and it did help alleviate some of the pain. Unfortunately, I could no longer afford to get regular treatments. And my insurance will not cover it any longer. It did take some time to feel the difference the acupuncture makes-so I hope you are able to feel the difference in your pain. Recently, I have tried massage, since it's not as expensive and I only have it done once a month. It does help with the pain and feels good overall. So, you could try that too if you are able? I'm glad your found my blog. Thanks for reading. Take care of yourself. Kat

Sunday, August 4, 2013

Dear Neutropenia

Dear Neutropenia, I am stronger than you. While you may 'get me' in the end-I get 'to win' the battles while I am here. Me. Not you. I AM strong. I plan to keep going. I wish I could pretend you are not there, but you are always just under the radar, ready to show yourself at any moment. I hate that. I wish I could feel well. While I don't remember the last time I felt 100% great, I do miss that. I hate feeling like I'm about to get sick all the time. But, I AM strong-and bigger than you will ever be! Kat

Friday, August 2, 2013

Message response to Bone Pain

Aisha and others, thank you for reading. Thanks for writing , Aisha. Thank you for your kind words. My bone pain is tolerable. Sure, I have bad days but, so do others. And honestly, I'm grateful for what I do have in life-a loving family, great friends, etc. I do take medications to make it tolerable. The pain is usually in my arms and legs but sometimes in my jaw, hands, hips, and rib cage. Usually it's just a deep ache but I do have shooting pains occasionally that increases the pain. On a normal day, the pain can be anywhere from a 3 to 6 with the shooting pains bringing it up to a 7 or 8 (on a 1-10 scale). But the shooting pain only lasts seconds luckily. Aisha asked for some help in regards to neutropenia, so here's what I can tell you: Netropenia is different for everyone. Most get bone pain from the injections but I don't take them. Daily, I have sore throats and fevers, with my Lu gs hurting occasionally. Things I have foud that help: moderate exercise, stretching, getting enough sleep, yoga, acupuncture, massage, and eating well. I do get nauseous sometimes so it's probably the hardest to eat healthy because on those days, I just want bland for like crackers, bread-carbs. I wash my hands a lot and stay away from those who are sick. My neutrophil count stays between 200 and 600 most times. It has been lower and up to 800 at times but stays in that range for the past 6 years. The doctors have not foud anything else wrong besides the Autoimmune Idiopathic (no known cause) Neutropenia. I have often thought there is something else that is making my neutrophil count low but, nothing has been discovered. I have had with the condition for 20+ years but really struggled with it the past 6 years with lot counts and daily symptoms. Aisha, if you want to talk more, please message me again with your email and I would be happy to answer any questions you have if I can. Take care everyone. I wish you all well. Kat