Hi there,
Body was not as fatigued today..so body must be healing (past infection, last week). However, temp did reach 100.2. I hate being hot. It's hot outside anyway-and then you add the body temp-can make you feel miserable.
Exercised this morning-before temp increased. Took pain meds all day due to bone pain-in legs and hands most of the day.
Resting this evening. Trying to get past the 'hopelessness' feeling. Inspirations of what I wanted do not seem like they will come to fruitation with my current health concerns. Not sure what to aspire to now?
Hope you all have a good night. Take care.
Kat
Wednesday, July 27, 2011
Sunday, July 24, 2011
Fighting infection
Hi again,
Here's an update: my blood counts showed some reactive lymphocytes, which is indicative of a viral infection. That is why my blood counts were elevated for me. Usually, the White blood count (WBC) is around 2.0 and the neutrophil counts are somewhere between 0.2-0.6. Doc says that they will most likely go back to normal.
I am feeling a little better than last week. Just the usual fatigue and bone pain from neutropenia.
Hope you had a nice weekend.
Kat
Here's an update: my blood counts showed some reactive lymphocytes, which is indicative of a viral infection. That is why my blood counts were elevated for me. Usually, the White blood count (WBC) is around 2.0 and the neutrophil counts are somewhere between 0.2-0.6. Doc says that they will most likely go back to normal.
I am feeling a little better than last week. Just the usual fatigue and bone pain from neutropenia.
Hope you had a nice weekend.
Kat
Saturday, July 23, 2011
July 23, 2011
Good evening everyone,
Well, it was 3 days of not feeling well at all. My bone pain was not alleviated by meds, yoga, stretching & my fatigue was bad enought that I had to come home from work and rest. So, I called my doctor and he wanted to see me.
We all know how the universe works-as soon as you make an appointment with the doctor, you start to get better. (I guess there is even tests that have proved this! Go figure :) ).
Anyway, my blood counts actually increased to 2.5 WBC and 0.7 Neutrophils. Most likely my body is fighting off something-so my bone marrow is working hard-hence the higher than normal counts.
My body has felt more tired still. Doctor and I discussed the ways I am trying to stay healthy-and to continue those. We also discussed things I should not be doing. Obviously, stay away from those who are ill, rest when needed, and stay away from day cares/schools. He said it would be good for me to stay away from my kids after-school program-and have my husband drop them off and pick them up; if I have to, then call inside and have them come out. Groups need to be avoided when possible. Doctor is worried about the upcoming flu season, bugs, and just bad germs out there. I have antibiotic on hand if my temp jumps over 101. However, we also discussed that I woudl most likely need to see a doctor too.
I am feeling much better today than earlier this week. So, that's good :)
So, that's this week. Bone pain is not as severe-yeah! :) Still there-but not as bad. Tired this afternoon but I went running this morning and then did some yard work-so I expected the fatigued.
So, all is well for now.
Enjoy the rest of your weekend,
Kat
Well, it was 3 days of not feeling well at all. My bone pain was not alleviated by meds, yoga, stretching & my fatigue was bad enought that I had to come home from work and rest. So, I called my doctor and he wanted to see me.
We all know how the universe works-as soon as you make an appointment with the doctor, you start to get better. (I guess there is even tests that have proved this! Go figure :) ).
Anyway, my blood counts actually increased to 2.5 WBC and 0.7 Neutrophils. Most likely my body is fighting off something-so my bone marrow is working hard-hence the higher than normal counts.
My body has felt more tired still. Doctor and I discussed the ways I am trying to stay healthy-and to continue those. We also discussed things I should not be doing. Obviously, stay away from those who are ill, rest when needed, and stay away from day cares/schools. He said it would be good for me to stay away from my kids after-school program-and have my husband drop them off and pick them up; if I have to, then call inside and have them come out. Groups need to be avoided when possible. Doctor is worried about the upcoming flu season, bugs, and just bad germs out there. I have antibiotic on hand if my temp jumps over 101. However, we also discussed that I woudl most likely need to see a doctor too.
I am feeling much better today than earlier this week. So, that's good :)
So, that's this week. Bone pain is not as severe-yeah! :) Still there-but not as bad. Tired this afternoon but I went running this morning and then did some yard work-so I expected the fatigued.
So, all is well for now.
Enjoy the rest of your weekend,
Kat
Wednesday, July 20, 2011
Home early today
Hi there,
Well, today I had to come home from work early. The fatigue and bone pain were significant again-has ranged from moderate to severe. Ugh! The pain in my hands has been so bad today. It's like I am not taking my pain meds-but I am. Perhaps my body is working hard to take care of something? My throat is sore-but not enough to go to the doctor. My lung have hurt periodically today-which is odd, I know-but again, not enough to go to the doctor. No cough anyway. So, the most it would be is pleurisy-which does hurt and is not fun.
Have been resting and now in bed-so going to go to sleep early.
Take care everyone.
Kat
Well, today I had to come home from work early. The fatigue and bone pain were significant again-has ranged from moderate to severe. Ugh! The pain in my hands has been so bad today. It's like I am not taking my pain meds-but I am. Perhaps my body is working hard to take care of something? My throat is sore-but not enough to go to the doctor. My lung have hurt periodically today-which is odd, I know-but again, not enough to go to the doctor. No cough anyway. So, the most it would be is pleurisy-which does hurt and is not fun.
Have been resting and now in bed-so going to go to sleep early.
Take care everyone.
Kat
Tuesday, July 19, 2011
Deep Pain
Hello. Today, I tried to do whatever I could to alleviate the pain I am having in my bones. It's such a deep pain, deep within the legs, hands, arms and jaw. At one point, my arm hurt so much that I thought it may break if it just twisted.
I started the day out by going to the pool to swim laps. I did hurt already but thought that the exercise may help. Well, I wasn't able to complete all the laps and I did stop. At first, I was mad. I hate that my body cannot handle swimming as I once did. Not too long ago (1-2 years ago), I could easily swim 1 mile. I had to decrease that to 2/3 mile, which I can complete most days. I do have to push myself to do so, but finish it most of the time. But, not today. So, I was mad at first-and then cried on my way home.
Unfortunately, the pain increased throughout the day. Luckily, it was my day to work from home. So, at least I could work in my shorts and t-shirt to stay comfortable. I tried heat and stretching but they didn't help much today.
I was sad this afternoon. I thought I may need to stay home again tomorrow if the pain and not feeling well continued. I am hoping it's just one of the bad days and tomorow-I will be 'normal' again. I guess we'll see.
I do hope you are all doing well. Take care.
Kat
I started the day out by going to the pool to swim laps. I did hurt already but thought that the exercise may help. Well, I wasn't able to complete all the laps and I did stop. At first, I was mad. I hate that my body cannot handle swimming as I once did. Not too long ago (1-2 years ago), I could easily swim 1 mile. I had to decrease that to 2/3 mile, which I can complete most days. I do have to push myself to do so, but finish it most of the time. But, not today. So, I was mad at first-and then cried on my way home.
Unfortunately, the pain increased throughout the day. Luckily, it was my day to work from home. So, at least I could work in my shorts and t-shirt to stay comfortable. I tried heat and stretching but they didn't help much today.
I was sad this afternoon. I thought I may need to stay home again tomorrow if the pain and not feeling well continued. I am hoping it's just one of the bad days and tomorow-I will be 'normal' again. I guess we'll see.
I do hope you are all doing well. Take care.
Kat
Friday, July 15, 2011
So Tired
Good evening,
The last three days, I have been so tired. And again, it's not the tired that can be helped by sleep or rest. Your body is just tired, achy, and there isn't a position that feels good.
The bones that hurt today were my legs, arms, jaw, arms and hands. My pain med helped a little bit. Didn't eliminate the paint today.
Starting to get a mouth sore-and it's on my tongue. Ugh! I hate when they are on your tongue. Those are the worst.
Still trying to work out most days. Sounds crazy some days-but it does help wtih the whole day-not as tired and usually helps the energy. There are a few time where my body is so tired that workint out does no good-and wipes me out the rest of the day.
I do wonder my WBC and Neutrophil counts are-has been a couple months. Still waiting for the big test that was done a couple weeks ago. But, it will be a couple more weeks until the results come in. Waiting game. You know what that's like ;)
Thanks for reading/listening. Hope you are all doing well.
Take care,
Kat
The last three days, I have been so tired. And again, it's not the tired that can be helped by sleep or rest. Your body is just tired, achy, and there isn't a position that feels good.
The bones that hurt today were my legs, arms, jaw, arms and hands. My pain med helped a little bit. Didn't eliminate the paint today.
Starting to get a mouth sore-and it's on my tongue. Ugh! I hate when they are on your tongue. Those are the worst.
Still trying to work out most days. Sounds crazy some days-but it does help wtih the whole day-not as tired and usually helps the energy. There are a few time where my body is so tired that workint out does no good-and wipes me out the rest of the day.
I do wonder my WBC and Neutrophil counts are-has been a couple months. Still waiting for the big test that was done a couple weeks ago. But, it will be a couple more weeks until the results come in. Waiting game. You know what that's like ;)
Thanks for reading/listening. Hope you are all doing well.
Take care,
Kat
Thursday, July 14, 2011
Legs Weak & in Pain
Hi everyone,
Legs hurt today-and hurt. Ugh.
I got frustrated tonight due to the chronic pain and not remembering what it feels like to feel good. I really do try to not feel sorry for myself-because I have a lot and I do appreciate what I have. Some days are just hard and I cried.
I am very tired, so going to bed.
Hope you have a great night and are doing well.
Kat
Legs hurt today-and hurt. Ugh.
I got frustrated tonight due to the chronic pain and not remembering what it feels like to feel good. I really do try to not feel sorry for myself-because I have a lot and I do appreciate what I have. Some days are just hard and I cried.
I am very tired, so going to bed.
Hope you have a great night and are doing well.
Kat
Tuesday, July 5, 2011
Blood Tests today
Hi everyone,
Well, I woke up earlier today....my son hates storms and woke me up. So, I collected the urine speciman and froze those. Never done that before at home! They gave you a small cooler to hold it all in. It came with a freezer block that I froze for several days. So, it all had to go in the cooler when I left for the hospital.
At the hospital lab, they took 4 viles of blood. Nothing new for those with neutropenia. And, I guess FEDex picks it all up and it gets delivered to a lab in North Carolona. They joked that I could tell others that my blood was sent to another state! Not sure if that's really cool :) (at least it's not something you wish for).
The test results can take up to a month. So, we'll see. I am not going to get my hopes up. I have been living wtih Neutropenia for 20+ years-I am sure they are not going to find the 'key' to this condition now. Still interesting to see what they will find.
Energy was a 5/6 today. I started with a bad heached but I assumed it was from fasting, being de-hydrated and not enough sleep. The headache did go away after I ate lunch.
You are all in my prayers.
Take care,
Kat
Well, I woke up earlier today....my son hates storms and woke me up. So, I collected the urine speciman and froze those. Never done that before at home! They gave you a small cooler to hold it all in. It came with a freezer block that I froze for several days. So, it all had to go in the cooler when I left for the hospital.
At the hospital lab, they took 4 viles of blood. Nothing new for those with neutropenia. And, I guess FEDex picks it all up and it gets delivered to a lab in North Carolona. They joked that I could tell others that my blood was sent to another state! Not sure if that's really cool :) (at least it's not something you wish for).
The test results can take up to a month. So, we'll see. I am not going to get my hopes up. I have been living wtih Neutropenia for 20+ years-I am sure they are not going to find the 'key' to this condition now. Still interesting to see what they will find.
Energy was a 5/6 today. I started with a bad heached but I assumed it was from fasting, being de-hydrated and not enough sleep. The headache did go away after I ate lunch.
You are all in my prayers.
Take care,
Kat
Monday, July 4, 2011
Happy 4th 2011
Happy 4th everyone,
The last 2 days were better than Saturday-so my energy was up a little. Saturday could have been just one of those days. Those with Neutropenia know what those are like. The fatigue just saps you.
The tests for the immunoglobulins is tomorrow. Getting ready. I have to bring in urine specimens as well. I guess they check everything.
They will send the urine and blood specimens in to the testing lab. It takes over a month for the testing to be completed. But, I will keep you posted.
Hope you all had a great 4th-if you are in the US. If not, have a great night!
Take care,
Kat
The last 2 days were better than Saturday-so my energy was up a little. Saturday could have been just one of those days. Those with Neutropenia know what those are like. The fatigue just saps you.
The tests for the immunoglobulins is tomorrow. Getting ready. I have to bring in urine specimens as well. I guess they check everything.
They will send the urine and blood specimens in to the testing lab. It takes over a month for the testing to be completed. But, I will keep you posted.
Hope you all had a great 4th-if you are in the US. If not, have a great night!
Take care,
Kat
Saturday, July 2, 2011
Very tired today...July 2, 2011
Hi there,
Well, I tried running this rmorning. I did pretty good, except that I couldn't finish my laps. I was so tired that I stopped and walked. I thought it was just the exercise but, it continued all day :(
I was so fatigued today....the kind that sleep/rest does not help. Ugh. I hate that. At one point, it was hard to stand long. Geez-what's up with that.
My thought was this: with the test that is coming up on Tuesday morning, I had to stop taking all vitamins and herbal supplements. I guess the vitamins may help more than I thought.
Hope you have a nice weekend.
Kat
Well, I tried running this rmorning. I did pretty good, except that I couldn't finish my laps. I was so tired that I stopped and walked. I thought it was just the exercise but, it continued all day :(
I was so fatigued today....the kind that sleep/rest does not help. Ugh. I hate that. At one point, it was hard to stand long. Geez-what's up with that.
My thought was this: with the test that is coming up on Tuesday morning, I had to stop taking all vitamins and herbal supplements. I guess the vitamins may help more than I thought.
Hope you have a nice weekend.
Kat
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