While I understand that I have more than most people, some days-I just want to scream about Neutropenia. Living with neutropenia day to day can be difficult. Many deal wtih symptoms ranging from fatigue to mouth sores to fevers, and more. Some days are good and life is great-and you want to participate in things you love-and that take energy to do. Other days, the fatigue overwhelms you and all you can do is try to get through your day as best as you can. And sometimes, the fatigue is so drastic that it limits you to bed rest. I hate those days. While I understand my body needs to rest, I hate not being able to do what I love-and earn my keep as others may say (work and play).
I have struggled with all kinds of days this past week. Of course, the great day may have led me to do more than I should have-and may have led to the day I had to rest in bed. Even after years of living with Neutropenia, I am still need learning to listen to my body and do what I can, whether that is work, play, or rest.
Hope you are doing well. Take care.
Kat
Thursday, May 19, 2011
Wednesday, May 11, 2011
May 11, 2011
Good evening,
So, I had my acupuncture appointment today. That went well.
But, I also picked up the herbal remedy that he created to see if it would help my blood. A pharmacist made it. It's a fine powder and I have to mix it with water. It didn't smell bad so I thought it would be fine. It was gross. So, I added a tea bag to make it tolerable. Next time, I will make it with less water and just gulp it down!
I am very tired today and my pain is significant. My temp is down to 99 so that's good. Resting and goign to bed soon.
I'll keep you posted on how the herbs are working.
Take care.
Kat
So, I had my acupuncture appointment today. That went well.
But, I also picked up the herbal remedy that he created to see if it would help my blood. A pharmacist made it. It's a fine powder and I have to mix it with water. It didn't smell bad so I thought it would be fine. It was gross. So, I added a tea bag to make it tolerable. Next time, I will make it with less water and just gulp it down!
I am very tired today and my pain is significant. My temp is down to 99 so that's good. Resting and goign to bed soon.
I'll keep you posted on how the herbs are working.
Take care.
Kat
Monday, May 9, 2011
May 9, 2011
Hi everyone,
Hope you are doing well.
I had a great time gardening this weekend! I LOVE Gardending! I planted a few seeds-Morning Glory and Marigold. But, holding off on planting too much (can still get cold in the Mid-west!) No worries, I wore gloves!
I still have mouth sores but, the skin cyst is almost gone. So, that is good. My hands are still hurting but, I brought a heating pad to work with me and use it when I can-so that helps some.
Still working on keeping up with the exercise, yoga, stretching, eating well, acupuncture, sleep/rest, and enjoying life.
The acupunturist is recommending an herbal remedy that I will make into a tea. I'll keep you posted on how that goes!
Stay well everyone. Sweet dreams.
Kat
Hope you are doing well.
I had a great time gardening this weekend! I LOVE Gardending! I planted a few seeds-Morning Glory and Marigold. But, holding off on planting too much (can still get cold in the Mid-west!) No worries, I wore gloves!
I still have mouth sores but, the skin cyst is almost gone. So, that is good. My hands are still hurting but, I brought a heating pad to work with me and use it when I can-so that helps some.
Still working on keeping up with the exercise, yoga, stretching, eating well, acupuncture, sleep/rest, and enjoying life.
The acupunturist is recommending an herbal remedy that I will make into a tea. I'll keep you posted on how that goes!
Stay well everyone. Sweet dreams.
Kat
Wednesday, May 4, 2011
May 5, 2011
Hi there,
I had acupuncuture today. I was asked to try chi breathing...really deep breathing that supposedly creates energy and then to channel that back into my body. We'll see!
I woke up feeling like cr@p today. But, I did my best. I exercised on the elliptical for 25 minutes. Couldn't do 30 :( But 25 is good-gotta be happy with that!
My hands hurt a lot today-bone pain in the hands. I hate when the pain is in my hands or jaw. Those are the worst places.
I have sores in my mouth and am still trying to get rid of a skin cyst. The cyst is almost gone but just won't totally go away-annoying.
Kids and I have fun outside this evening playing volleyball and planting some tomato & green pepper seeds! And, that is what it's all about! They are so great!
Signing off. Keep well.
Kat
I had acupuncuture today. I was asked to try chi breathing...really deep breathing that supposedly creates energy and then to channel that back into my body. We'll see!
I woke up feeling like cr@p today. But, I did my best. I exercised on the elliptical for 25 minutes. Couldn't do 30 :( But 25 is good-gotta be happy with that!
My hands hurt a lot today-bone pain in the hands. I hate when the pain is in my hands or jaw. Those are the worst places.
I have sores in my mouth and am still trying to get rid of a skin cyst. The cyst is almost gone but just won't totally go away-annoying.
Kids and I have fun outside this evening playing volleyball and planting some tomato & green pepper seeds! And, that is what it's all about! They are so great!
Signing off. Keep well.
Kat
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