Reaching out..... Please respond

Hi there. Thanks to the individual that sent a message recently. I am so sorry about your experience with cyclic neutropenia. Please feel free to write again, and include your phone or email- whatever would be the best way for me to get in touch with you. I would be more than happy to talk to you. I went years without knowing anyone with neutropenia and it's almost validating to do so! So please let me know. I do not post the comments, so no one will see it but me. Honestly, I remember talking to someone who had neutropenia and I almost felt a sigh of relief-like I'm not crazy; this is real! So please reach out. I would love to talk with you. Kat

Sick of symptoms, but try to stay positive,October 2013

Hello blog readers. Hope you are well. Thank you for reading this blog; you are appreciated. The bad bone pain I was struggling with a couple weeks ago did go away. I still have it every couple days but at least it's not every day right now. Thanks for your concerns. Now, I'm dealing with tonsillitis that is bad and lung pain that makes my ribs feel like they are broken when I take deep breaths sometimes. I know it's the neutropenia working overtime, but really? Can't you take a break? I really try to stay positive. I do feel blessed with many things that I do have in my life. But some times, I just want to feel no physical pain at all. Days like today make me want to scream: is that too much to ask? Ugh. I know many of you feel the same whether you have neutropenia or you struggle with other things. I am aware that every one struggles with something. I don't pretend that I am the worst off. I don't believe that at all. Some times I just want to feel 'good'-no pain, no symptoms, no fever. On the bright side-just so you all know-I am Thankful and appreciative for all I have in my life. Thanks again for listening and reading. Take care. Kat

Hard Days in regards to pain

Hi everyone. Hope you are doing well. I have had a hard couple days in regards to bone pain. Some days my body sucks. Bone pain has been in my toes, fingers, ribs, legs, and arms. It sometimes feels like my bones are going to snap in half. Nice huh. I know I should not get down about it-my body is working hard, I get that. But, I still hate it. Even my collar bone hurt today. Throat is still sore but I would take that pain any day over this recent increase of bone pain. My lungs have hurt too-I will keep an eye on that and be seen if it gets worse. Just think it's part of the whole package going on right now. Hope you are all doing well. Thank you so much for reading my blog! I appreciate each of you!