Message response to Bone Pain

Aisha and others, thank you for reading. Thanks for writing , Aisha. Thank you for your kind words. My bone pain is tolerable. Sure, I have bad days but, so do others. And honestly, I'm grateful for what I do have in life-a loving family, great friends, etc. I do take medications to make it tolerable. The pain is usually in my arms and legs but sometimes in my jaw, hands, hips, and rib cage. Usually it's just a deep ache but I do have shooting pains occasionally that increases the pain. On a normal day, the pain can be anywhere from a 3 to 6 with the shooting pains bringing it up to a 7 or 8 (on a 1-10 scale). But the shooting pain only lasts seconds luckily. Aisha asked for some help in regards to neutropenia, so here's what I can tell you: Netropenia is different for everyone. Most get bone pain from the injections but I don't take them. Daily, I have sore throats and fevers, with my Lu gs hurting occasionally. Things I have foud that help: moderate exercise, stretching, getting enough sleep, yoga, acupuncture, massage, and eating well. I do get nauseous sometimes so it's probably the hardest to eat healthy because on those days, I just want bland for like crackers, bread-carbs. I wash my hands a lot and stay away from those who are sick. My neutrophil count stays between 200 and 600 most times. It has been lower and up to 800 at times but stays in that range for the past 6 years. The doctors have not foud anything else wrong besides the Autoimmune Idiopathic (no known cause) Neutropenia. I have often thought there is something else that is making my neutrophil count low but, nothing has been discovered. I have had with the condition for 20+ years but really struggled with it the past 6 years with lot counts and daily symptoms. Aisha, if you want to talk more, please message me again with your email and I would be happy to answer any questions you have if I can. Take care everyone. I wish you all well. Kat

Bone pain, July 2013 update

Hi everyone. Thanks again for reading my blog. I hope it helps those that need it. And, Happy 4th July to those in the U.S. and to all those throughout the world. Just an update for those avid readers: I have been feeling nauseous off and on (sometimes occurs when ANC counts fluctuate), exhausted later in the day, and moderate bone pain, even on pain meds. The last few nights the pain was enough to make me rest/get in bed earlier than normal. I have still been exercising and stretching. And, taking vitamins. Just is what it is. Funny how we can get accustomed to higher pain tolerances as time goes on. What is a 5 now (on a 1-10 scale), used to be a 7-8. I assume that will keep happening-the bone pain getting worse-as my body fights harder and harder to get healthy. I get mad sometimes but really-I am so blessed and have so much in my life, it's hard to think about complaining too much. Sure, I want more things, I still have dreams to make differences-but I am honestly happy and content with everything I have now. Family and friends and things I love about life. I hope you find contentment and happiness with the things and people in your life. Take care. Thanks for reading. Kat