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Wednesday, May 9, 2012

Neutropenia....Still Doing Well & You Don't Define Me

Hi everyone, Hope you are all doing well. I have still been feeling good. (Knock on wood-right!) I still have the every day bone pain-but the pain meds are helping with that. If I forget to take one, I remember why I take the pain meds. Ouch! I am continuing my regimen: exercise, eating well (Most days!), vitamins, stretching, herbs in my protein smoothies, and enough sleep. I also don't feel that I get stressed as easily since I have been home from the hospital. I guess thinking you could be near the end puts everything else in perspective :) Last week, I took a class. We discussed our inner critic and why we couldn't write about certain things. Anyway, it eye-opening for me. One, I am not very good to myself and I need to change that! Second, I starting talking to the 'neutropenia' like it was a person. Wow! I finally said-Neutropenia You do not define me. I get to define me. Neutropenia may be part of my body and it certainly has the capacity to bring me down-but it does not define who I am! My family, friends, my interests and passions help define who I am. While I am passionate about helping others with neutropenia and advocating for their health care-I am not passionate about the condition itself. As you know, the condition sucks. One day you feel fine and before you know it-you feel like crap for no reason other than your body cannot handle all the germs and bacteria it comes into contact with every day-not to mention your own bacteria/germs in your body. Sometimes, Neutropenia sucks. But, I do hope you find an inner peace so that you can enjoy life-a quality life-and not worry about it all the time. That is my wish for all of you. Have a wonderful day! Kat

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