Feeling absolutely wonderful....knock on wood

Hi everyone. Sorry that it has been so long since I have written. I didn't know what to say anymore. I didn't want to complain about my symptoms because honestly, I believe there are worst things. Many of you suffer from terrible symptoms-I'm so sorry. I do hope the best for you and keep you in my prayers. Last month, I had the stomach flu pretty bad. I couldn't eat and it lasted a long time. During that time, my pain went away. Yes, all of it. Bone pain. Sore throats. I started to think it was connected to food? So, I wanted to try something-I have eliminated gluten and have limited my sugar. I feel wonderful! The pain is gone. No pain meds for weeks! Yes! Please note-I do not believe this is associated with the neutropenia. For years, doctors said the symptoms do not match others with neutropenia and thought it was something else. I didn't believe them. Perhaps it is true? Too soon to tell. I still have low grade fevers-which is from the neutropenia. I hate to even write this knowing the pain could return at any moment. I have had neutropenia for over 20 years. The other pain-bone/muscle, nausea, sore throats, lung pain-started about 2008. It's been a long ride. Ugh. Anyway, it's hard to eat this way-but if keeps making me feel this good-I'll continue forever! Yahoo. I'll keep you posted. As for my neutropenia, my counts are staying in the normal range for me: moderate to severe neutropenia. I have continued to exercise-swimming and walking. I am afraid to run still, thinking the pain will return. But I will keep moving along, praying this all stays this way. Thanks for reading. I will keep you posted. My thoughts and prayers are with all of you who struggle with neutropenia. Kat

Bone Pain Update

Hi everyone. Hope you are well. Bone pain has been significant lately, ugh. It's like I'm not taking pain medications. I'm trying to exercise regularly to help alleviate some of the pain. Stretching helps a little bit. Making sure I get enough sleep. This time of year is probably not helping. But trying to stay upbeat. Praying for all of you going through hard things. You are so strong. Kat

Bone Pain & Fatigue

Hi everyone. Hope you are all doing well. My bone pain has been moderate the last couple days, even on pain medications. And,my bones feel fatigued-like they are deteriorating. I know that sounds crazy, but they feel weird, very tired, and hurt. I know they are working hard. Just sick of of this crap. I know those that have neutropenia know what I'm talking about. Some days you just get sick of it all. Ugh! So, while I am so very thankful for all I have in life-my family, home, and things I take for granted all time-I just want to wallow and scream about my neutropenia pain, symptoms, and the deterioration of the health I do have and will lose as time goes on. Ugh! These days suck. I am thankful to all of you who read. I pray for all those with neutropenia and other health conditions envy day. My you find some peace. Kat

June 5, 2012 Pain, Fever and Bruises

Hi everyone, Hope you are well. I am doing fine. My bone pain in my body has increased in the last couple days. I can handle it but, it still sucks sometimes. Sometimes I wonder, Why? What's the point? Not sure yet. If these posts help someone out there-you-then, that's good. That is good enough for me. So, I get over that quickly. My pain meds-which includes acetaminophen-has not been taking care of my fevers. So, my daily fever-with the meds-is between 99 and 100. Never enough to go to the doctor, but enough to make you feel like crap. I guess they would be higher without the meds. I have been noticing more bruises on my body the last couple days. Ugh. Bruises on legs and stomach for no apparent reason. The bruises on my legs have always happened-but there are a few more than normal and the stomach is new. And those hurt. (I do not take Neupogen injections; so, they are not from that in case you are new to reading the blog :) ). As far as the rest of things go, I have been feeling fine to good. Like many of you, I will sometimes get mad about the pain that I experience or just the general feeling of fatigue and feeling run down; but then realize that there are so many others out there that have to deal with worse things.....so I get over it. Honestly, I have two legs, two arms, the ability to see, hear, feel, etc. I thank God for those things every day. Thanks for listening (reading). Hope you all have a good week! Kat

Mid-May 2012

Hello everyone. Hope you are doing well. Thanks to all of you for reading my blog. I appreciate it very much! Just wanted to give you an update on how things are going. Honestly-most of it is the same. I continue to exercise, (try to) eat well, sleep enough, take vitamins and herbs, stretch-I have not done yoga or acupuncture in awhile-and I need to follow up with both of those! Today, I have some cuts/bruises on my arms-from gardening, which I love! I think I may be getting a mouth sore, which I haven't had in quite a while. They suck, don't they! Yuck! I feel for you who know what I'm talking about. They are like the size of miniature craters :) Anyway, I used the magic mouthwash that I had gotten from the hospital last month-forgot I had it-and wow-I think it may go away! We'll see. My bone pain is between mild and moderate, as long as I stay on the pain meds :( If I do forgot to take it, the pain jumps up the scale. I am holding on at only 2 pills/day though! Down from before, so that's good. That's it for today. Thanks again for reading and have a wonderful day! Take care of yourselves, Kat

No Pain Meds & Acupuncture continues

Yesterday, I had to be taken off my pain meds (for bone pain) because it caused gastritis. I have to take Prilosec for 6 weeks to take care of the stomach issues-and cannot take any pain meds during this time. I am worried about the pain. The pain meds didn't get rid of the pain when I was taking them, just diminished them. We'll see how it goes.

Today, I had acupuncture for the second time. I didn't feel the energy like I did the first time. However, I was extremely tired today-like a 4 on a scale of 1 to 10. The Acupuncturist was worried about the pain to come as well and will look into herbs/vitamins that may help.

I feel like I am coming down with something. I have a low grade fever but thinking that's from not taking my pain med (must have been helping the fevers too). I have 4 mouth sores. My throat/lungs hurt. Hopefully it will pass! Get a good night sleep.

Good night and sweet dreams.....  :)